Why was IPSG formed?
Our group was started in March of 2012 by pediatric orthopaedic surgeons and researchers from all over US and other countries who felt the need to improve the care of patients with Perthes disease. We recognized that while Perthes disease has been known for over 100 years, many important questions about the disease remain unanswered.
What is unique about the IPSG?
The views represented by IPSG are not based on one surgeon’s or one institution’s views about Perthes. Our views are based on over 40 pediatric orthopaedic surgeons coming together to openly discuss and form consensus about what medical information is evidence-based and what is not regarding Perthes. We aim to identify the areas of uncertainty about the disease and to address these questions through a collaborative research program.
Our mission
The mission of the IPSG is to advance knowledge of Perthes disease and to disseminate objective, evidence-based information to the patients and their families and to the medical community. When dealing with a disease as rare as Perthes, it is important to have consortium to share and vet knowledge as well as validate procedures and outcomes. Through education and research, our aim is to change the way we treat Perthes disease in a positive manner.
Education and Advocacy
Medical Education
The IPSG supports the continuing education of medical professionals, believing that advancement through education is crucial to improved patient outcomes. The IPSG has had the honor of presenting at conferences hosted by the American Academy of Orthopaedic Surgeons as well as the European Pediatric Orthopaedic Society.
Parent Resources
Perthes disease is a variable disease with equally specific and varied treatments. From stage 1 to stage 4, this can be overwhelming. The IPSG believes better outcomes are reached through honest expectations of the disease process and treatments. You’ll find resources here to help you understand the disease and its impact.
MR Perfusion Index as a quantitative method of evaluating epiphyseal perfusion in Legg-Calve-Perthes Disease and correlation with short-term radiographic outcome: a preliminarystudy. Du J, Lu A, Dempsey M, Herring T, Kim HK. J Pediatr Orthop 2013. PMID 23872796
Application of the surgical dislocation approach to residual hip deformity secondary to Legg–Calvé–Perthes disease. Novais EN. Journal of Pediatric Orthopedics: 33:S62-S69, 2013. PMID 23764795
A comparison of non-contrast and contrast-enhanced MRI in the initial stage of Legg–Calvé–Perthes disease. Kim HK, Kaste S, Dempsey M, Wilkes D. Pediatric Radiology: 2013 Mar 12 [Epub ahead of print] PMID 23478799
Management of Legg–Calvé–Perthes disease using an A-frame orthosis and hip range of motion: A 25-year experience. Rich MM, Schoenecker PL. Journal of Pediatric Orthopaedics: 33(2):112–119, 2013. PMID 23389562
Quantitative measures for evaluating the radiographic outcome of Legg–Calvé–Perthes disease. Shah H, Siddesh ND, Pai H, Tercier S, Joseph, B. J Bone Joint Surg, 95(4):354-361, 2013. PMID 23426770
The fate of the joint space in Legg–Calvé–Perthes disease. Vijayan S, Mehta O, Jacob G, Siddesh ND, Shah H, Joseph B. Skeletal Radiol: 42:341-345, 2013. PMID 22714126
Valgus femoral osteotomy for noncontainable Perthes hips: prognostic factors of remodeling. Yoo WJ, Choi IH, Moon HJ, Chang S, Cho TJ, Choi YH, Moon S, Chung CY. Journal of Pedatric Orthopaedics: 2013 [Epub ahead of print] PMID 23812133
Microcrack Density and Nanomechanical Properties in the Subchondral Region of the Immature Piglet Femoral Head following Ischemic Osteonecrosis. Aruwajoye OO, Patel MK, Allen MR, Burr DB, Aswath PB, Kim HKW. Bone: 52:632-39, 2013. PMID 22889721
Legg–Calvé–Perthes and slipped capital femoral epiphysis: major development causes of femoroacetabular impingement.Mills MB, Lewis CL, Schoenecker PL, Clohisy JC. Journal of the American Academy of Orthopaedic Surgeons: 21:S59-S63, 2013. PMID 23818193
Shelf acetabuloplasty in the treatment of severe legg-calvé-perthes disease: good outcomes at midterm follow-up. Grzegorzewski A, Synder M, Kmieć K, Krajewski K, Polguj M, Sibiński M. Biomed Res Int. 2013 Epub Nov 27. PMID 24377097
Role of Advanced Imaging in the Diagnosis and Management of Active Legg-Calve-Perthes Disease. J Am Acad Orthop Surg. Laine JC, Martin BD, Novotny SA, Kelly DM. 2018 Aug 1; 26(15):526-536. doi: 10.5435/JAAOS-D-16-00856. PMID: 29939867